Our bimonthly newsletters contain much of the information located in the What’s New section.  More detail may be found on the website, along with other writings.  Of greatest value is the comprehensive recording of the previous month’s general meeting presentation.  Fortunately, these summaries are available for the last 22 years – !! – as recorded by Tom Thomas and listed on his website at www.thomastthomas.com -under NAMI EastBay In the box on his home page. Enjoy.

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FASMI

Advocacy/Activist Updates

We founded FASMI (Families Advocating for the Seriously Mentally Ill) in about 2018, to continue the work of Voices of Mothers and Others (VOMO).

My own journey with my family member has gone on seven years.  Like so many people I met through VOMO and FASMI, I journeyed from worry and bewilderment, to naivete and optimism, to disbelief, and then to rage at the terrible risks the system was putting my dual-diagnosis daughter through.  They let her spend a couple summers wandering the streets of the Bay Area taking meth and being alternately helped and abused by strangers.  She had “the highest level” of case management, but her case manager couldn’t find her or do anything for her.  She was discharged to a licensed, official “board-and-care” that provided no care but gave her every chance to take meth and disappear.   At times I was prevented from seeing her, communicating with her, or finding out what was going on with her illness.  It made no sense at all.

Someone advised me then that family members like me had a choice of sinking into resignation or resolving to fight the system and force it to commit to keeping our family members alive and safe.  

Along with people in VOMO and FASMI, I went to meetings, shared stories, learned impenetrable acronyms, picked up all kinds of advice and generalizations about what the system could and couldn’t do, and tried to figure out who was on our side (if anyone), who was the enemy (if anyone), and where these barriers and disappointments were coming from.

Why FASMI Wants Beds

FASMI has an agenda that is a work in progress, but at the top our agenda always has more acute and subacute beds.  

It is so obvious to us that there are not enough beds. So many times, our family members could go one way or another.  They could get treatment or they could wait. They could be held or they could be turned away.  They could go to jail, or they could go on the street and get in trouble.  So many times we were told that they couldn’t be held at somewhere that might help—John George, Villa, Gladman, Psynergy—because there just wasn’t a space for them.  And if they got in, often we were told that they had to be discharged before they were ready so someone else could have their spot.

So many innovations and changes are proposed to help the seriously mentally ill—72 of them recently by a county task force—but so many of these changes do nothing to fix the problem we see.  This is why we decided to demand actual, concrete things, hospital beds as well as board-and-care beds, and see who is with us. 

This county can be measured and judged by the places it holds its seriously mentally ill.  Several hundred of them (25-30 percent of the jail population) may be in Santa Rita on any given day.  Three thousand or more may be homeless on the street.  Others are living at home in shaky circumstances, with family members hoping for help with their next crisis.  But only some 300 people with SMI at a time can be in hospital beds, even if they need them desperately, and even if a couple months of treatment would have a good chance of restoring them to some kind of autonomy.  

Solutions that don’t address the lack of these actual places do not solve our problem.  In coalitions and in national groups we are accused of talking about beds too much.  But we have to talk about them, or our coalition partners will just put these beds further and further off into the future. 

And when our national and state organizations fail to talk about beds—fail to talk about getting rid of Medi-Cal’s IMD exclusion, fail to talk about funding for new construction—they put off a solution further and further into the future.  The “big tent” that embraces all mental illness and substance abuse can get so big that the troublesome 1 or 2 percent that are too sick to demand treatment are left out of the solution.

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Homeless figures—2019 everyone Home count, 8000 homeless, 39% report self-report psychiatric conditions

Santa Rita figures:  DAC’s discussions with ACBH and the Jail

NAMI East Bay Speaker Meeting – May 26 @ 7:30PM

Link to Video Recording of Presentation:
https://us02web.zoom.us/rec/share/H2KRCZJuo33EXzXp3w_wzuoulT9t-rwlmVivj1VX2jqLaZmzyP0BSEkzTMm8pfjm.swea3AfqJIkQHib- (Passcode: %da$qV1m)

Baron L. Miller, J.D. personal website: https://www.baronmillerlaw.com/

Purchase Laws We Need to Know book directly from author: https://www.baronmillerlaw.com/book

Available in Paperback or Digital on Amazon: https://www.amazon.com/Laws-We-Need-Know-Understanding/dp/1734771208/ref=sr_1_15?dchild=1&keywords=laws%20we%20need%20to%20know&qid=1601238568&s=books&sr=1-15

Available in Paperback or Digital at Barnes & Noble: https://www.barnesandnoble.com/w/laws-we-need-to-know-baron-l-miller/1137463085?ean=9781734771206

Bay Area Hearing Voices – Online Discussion Group – 4.28 @ 7:30pm

Our next discussion will be with Ed Herzog, a NAMI East Bay board member and one of the founders of the Bay Area Hearing Voices Network (BAHVN), part of the international HVN-USA. His organization offers weekly, online hearing voices groups for family members and adult voice hearers, as well as support and education.  

Values of the group include challenging society’s norms on what is normal and what constitutes an illness, respecting/honoring our and our loved ones’ experiences, undoing stigma by using non-stigmatizing and owning our feelings.

Check out the website www.bayareahearingvoices.org for more information about this organization and join us for a conversation with Ed.

These specific-topic discussion groups are offered to alternate with the bimonthly speaker meetings and the format will be more casual and interactive and less didactic.

Meeting Recording:
https://us02web.zoom.us/rec/share/GXjDOrX3IA7WMRb0ESPVU9sm_SR5Zd9C3SO1RMebtkOL4mij56Y4IOe7KksLdDlI.2Wm50S03FEky9mKC

Access Passcode: cY$H?f3#

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NAMI East Bay Speaker Meeting – March 24 2021 * (See below for link to the recording of this meeting)*

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Note: The meeting will be recorded both in written form, for the next edition of this newsletter, and as a video recording accessible via the What’s New link on our website.

Click on the flyer to register for the Speaker Presentation and Receive the Zoom link for the online conference room or go to our website https://namieastbay.org, click on “What’s New,” and follow the link.

https://us02web.zoom.us/rec/share/weKulp3Qwr7PBySHxtWv8nLQXrXfofn6WJfmKLxOZx_AEwbicQT7LN3-7ijqotte.X01LGIX0e36ptruxPasscode: 8aN6l!34