Category: What’s New

Genetics research, Susan Kuo PhD (Instructor in Psychiatry, Center for Genomic Medicine, Massachusetts General Hospital: Stanley Center for Psychiatric Research, Broad Institute of MIT and Harvard).   
   We are thrilled to hear from Dr. Kuo,particularly in light of the provocative Oct 5 New York Times article by Maia Szalavitz  on the issue of differential diagnoses.  And our interest is high since the word/concept of “autism” has come up in just about every support group meeting over the last year.
   Please note time change.  Because Dr. Koa resides on the East Coast, we scheduling her presentation at an earlier time, 5:00-6:30pm PST on zoom.  We will be recording her talk and that will be posted online.  Zoom link is below.

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https://us02web.zoom.us/j/87699746990

Meeting ID: 876 9974 6990
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Jennifer Winship is the founder of Full Circle Fiduciary which offers “comprehensive  Bay Area trust administration services. These include fiduciary services, trustees and special needs trusts, conservatorship, insurance and care navigation. We also solve complicated medical, disability, housing and special needs problems.”

For those of us preoccupied with worry about the future for our loved ones, we need to know as much as possible about the services out there.  Join us for an informational and interactive session.

Meeting recording and speaker notes below:

https://us02web.zoom.us/rec/share/CyP6hLeZ1o4qklV1kDVQ85O10YVBHTr-QXLoDF4aAH5GTge8qFKQLPqwcmrDs6rs.4GHw3Twf-dVSO0p6 Passcode: Y#IiV0GP

August 28, 7:30-9:00 pm on Zoom. 

  Stephen Dale, Attorney, will present on Special Needs Trusts. His website at www.dalelawfirm.com is a rich one and contains several educational videos which will be helpful as you consider and/or initiate this process, so crucial in planning for the future of your ill relative.

Recording and Speaker Notes can be found below:

Zoom Recording Passcode: +*F.kmV2

The Supportive Housing Community Alliance (SHCLA) is a new collaborative organization that uses the community land trust model to create and steward affordable supportive housing and  home ownership opportunities for and with people living with serious mental health conditions and extremely low income.  The land trust acquires homes and master leases them to adult residential  facility operators.   The model is  is one of community ownership, long term affordable availability and a resident-centered emphasis.  Website is www.shcla.land).

You can watch the video recording here:

https://us02web.zoom.us/rec/share/4khcizFxNCJblJL3hFYTJHPYysQKmfjePAjyQRiIKsTF9jjLk-RvqkmIACVRvdfH.-9wY_IA5b2YJoLKg

Passcode: PuY15z^u

Understanding Borderline Personality Disorder
Wednesday, June 26, 7:30-9:00
Zoom link: https://us02web.zoom.us/j/82783936531

Meeting ID: 827 8393 6531

 Join us as Abby Ingber, Executive Director of the National Education Alliance for Borderline Personality Disorder, along with a parent and individual with lived experience, present to us. The website www.NEABPD.org is a wealth of information.

Gain a greater understanding BPD including diagnosis, stigma and treatment methods.  Hear from people diagnosed with BPD and family members about their journey and ways to find treatment and support. Presentation will be videotaped and posted here, along with a writeup.

Recording can be found below:

https://us02web.zoom.us/rec/share/BJXEDPzvkXsXoFupJ7fcVUOKF2cmDiUk9MrqdOt18QT-INXv7QsYCEMQB7pcGJEV.b9XpBCMD-uluA7eF

Passcode: *r8nsUt2

Speaker Notes can be found here.

Inside John George Psychiatric Hospital 

      Wednesday, May 22, 7:30-9:00 – zoom link below

Most of us family members know John George only in a time of crisis when we’re experiencing a state of worry, exhaustion, confusion, fear, anxiety, sadness – you name it…every emotion in the book.  What really goes on there? 

Join us for a conversation with Patty  Espeseth, Chief Administrative Officer: Francesca Tenenbaum, Director Patients’ Rights and Advocacy Training; and Beverly Bergman, Family Caregiver  Advocacy Specialist.  These friends of NAMI are highly experienced and know the territory well.

Recording of the Meeting can be found here:

https://us02web.zoom.us/rec/share/LIcB7lkQaLApnGwnUPHm4hYvjPnY-ZzsjWZRO1l0MnZxJ41TVfDawedYnbDHQtGl.SCEUXCe21OAdPIcJ

Passcode: y+vD12?B

Speaker Notes can be found here.

Been There, Done That.  Our 4th Wednesday (April 24) educational presentation will be a casual zoom discussion with five panelists who self define as consumers but who have gotten through the bad parts, made some peace with it all and are now working in the mental health/illness arena.  Jesse Marsh, Lee Davis, Jeffrey Caiola, Viveca Bradley and Ian Morgan will share their stories and insights and discuss the perspective they developed.  Link for the 7:30-9:00 pm event is 

    Join Zoom Meeting: https://us02web.zoom.us/j/87056662939

Recording of the meeting can be found here: https://us02web.zoom.us/rec/share/SUmCgG0v2gzge0S52PyOUU9EwQfFfa0YdHgME459vcDF-4eZuPNDAVyxcERHxYjp.s5J6eMS37MoClSqX Passcode: 2?caQh#a